Ensuring confidentiality and safety of cancer registry data in Kumasi, Ghana

Cancer registration involves collecting information on patients with cancer. Population-based cancer registries in particular are useful in estimating the disease burden and to inform the institution of prevention and control measures. Collecting personal information on patients with cancer requires strict adherence to principles of confidentiality to ensure the safety of the collected data. Failure may have legal and medical implications. The Kumasi Cancer Registry was established as a population-based cancer Registry in 2012.

July 27, 2017

Expert Meeting on Privacy, Confidentiality, and Other Legal and Ethical Issues in Syndromic Surveillance

For syndromic and related public health surveillance systems to be effective, state and local health departments and the Centers for Disease Control and Prevention (CDC) need access to a variety of types of health data. Since the development and implementation of syndromic surveillance systems in recent years, health departments have gained varied levels of access to personal health information for inclusion in these systems.

July 30, 2018

Privacy Protection versus Cluster Detection in Spatial Epidemiology

With the widespread deployment of near real time population health monitoring, there is increasing focus on spatial cluster detection for identifying disease outbreaks. These spatial epidemiologic methods rely on knowledge of patient location to detect unusual clusters. In hospital administrative data, patient location is collected as home address but use of this precise location raises privacy concerns. Regional locations, such as center points of zip codes, have been deployed in many existing systems.

July 30, 2018

Expert Meeting on Legal and Ethical Issues in Syndromic Surveillance

For syndromic and related surveillance systems to be effective public health tools, state and local health departments and CDC need access to a variety of types of health data.  However, since the development and implementation of syndromic surveillance systems began in recent years, experience in gaining access to personal health data has been mixed.  Although some have argued that the HIPAA Privacy Rule permits data owners to disclose protected health information to public health authorities, covered entities have cited HIPAA in refusing to provide data to researchers and health departmen

July 30, 2018

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